Check SCREEN READER MODE to make this survey compatible with screen readers.
An Invitation to: A Day in the Life of a Longhauler |
What this project is about?
Despite 3.5 million Canadians experiencing Long COVID symptoms, there continues to be a lack of acknowledgment and awareness of Long COVID.
This project asks longhaulers to share photos of their daily life with the public to:
- Make this illness visible
- Reduce stigma and shame
- Advocate for support
SPACE
Who is supporting this project?
We’re an interdisciplinary team, including a patient and community advocate, social justice, and health researchers at the Pacific Institute on Pathogens, Pandemics and Society (PIPPS) at Simon Fraser University (SFU).
SPACE
This project emerged from conversations with Long COVID patients, carers, and healthcare workers, who identified greater awareness and education of Long COVID as a priority. To read more about us and our work, you can check out our article: 'People with long COVID continue to experience medical gaslighting more than 3 years into the pandemic' in The Conversation Canada.
Where will these photos be exhibited?
This project was launched at a Long COVID public event with Pulitzer-prize winning science journalist Ed Yong as part of SFU's President’s Dream Colloquium in One Health on April 4. The team is now working towards a public exhibition at the Museum of Vancouver in 2025.
SPACE
To learn more, click on OK, then next.