INFORM RARE Youth Advisory Group Application Question Title * 1. What is your age (in years)? Question Title * 2. What is your diagnosis? Mucopolysaccharidosis (MPS) Phenylketonuria (PKU) Spinal muscular atrophy (SMA) Question Title * 3. What city do you live in? Question Title * 4. Why are you interested in joining the Youth Advisory Group? (100-200 words) Question Title * 5. What is your name? Question Title * 6. What email should we use to contact you? Question Title * 7. If you are not selected at this time to be part of the Youth Advisory Group, are you interested in having your name on a waiting list? Yes No Done